Wednesday, May 1, 2013

Health Activist Writer's Challenge day 11 (social networks)

Today’s Prompts:
  • Write about your favorite social network. Do you love Twitter? Facebook? Pinterest? Why?

This is an easy one....Facebook....because Still's  is so rare there are NO "face to face" in real life support groups anywhere in the word...

Facebook has been the best thing that has ever happened to me as far as "meeting" others like me, I went from having an illness that only effected 0.00006% of the world's population and knowing that I would pretty much be dealing with this on my own because well with something so rare it wasn't likley I would ever run across someone with AOSD....

Enter Facebook...I now have friends from all over the world, anytime day or night if I log on someone is there on the other side of my new lifeline

The friendships I have made are amazing, I would never had dreamed that the best friends I have ever had would be people I have never actually met in real remember I was born in the early 70's and there was no such things as an internet when I was growing for me this is amazing to have such close friends all over the world.

Te most amazing part is how deep and true these relationships are...I have a wonderful dear friend that I met on the still's support group immediately after her husband passed away from Still's related complication's...she has flown from Wisconsin to Texas twice in the last year to see these are not "just people I chat with online" My Still's family in many cases are a much bigger part of my life than  actual members of my family (other than hubby and kids) and defiantly a more "true" relationship than most friendships I have ever had in my life.

I get a lot of kidding in real life for spending so much time on Facebook since I am a 40 yr old...but Facebook is the only place in the world where I am not "abnormal" I am just like everyone else...I understand their life and they understand mine...that sounds so corney I know, but there is no other way to explain it...if I talk anti TNF, IL-6 or IL-1 inhibitors to someone else they would stare at me like I had two heads....when those things are the very thing that keeps me and others able to life a "semi normal life" and are as much as part of our world as say a designer hand bag is to most of the women I know...we simply say what is on our mind without worrying if we sound like we are complaining...because we all GET IT...

So what is a fun place for most to escape reality for me is a place where I am loved and accepted and am just like everyone else

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