Sunday, April 21, 2013


Each day for the next 30 days I will be participating in the HAWMC  Health Activist 2013 writing challenge

Ya'll will have to bear with me as I learn as I go... I am not one to get "real" about the nitty gritty of my illness (AOSD) with many people, YES I will talk about it to anyone who will listen but I am selective about who knows the "other side of it, the emotional side", if that makes here goes...
Today’s Prompts:
  • Why you write – tell us a little bit about why you write about your health online and what got you started.
  • Why HAWMC? This is our third year of the Health Activist Writer’s Month Challenge – why did you get involved this year? Are you a newbie to #HAWMC or a veteran?

    why do I write? well that's a tough question I guess in some ways writing can be therapeutic when it all gets to be "a bit much" sometimes. Since I blog about my normal life as a mommy and wife it seemed best to add my illness in there as well because it is a HUGE part of WHO I am and why I do things the way I do. I did consider NOT mentioning my AOSD when I created this blog and just writing about monthly boxes, potty training and "normal" mommy stuff....BUT, I am not a "normal" mommy , am I? So I decided to embrace my AOSD in my blog just as I have in my "real life" ...In a matter of fact this is my life show of courage....Heck, even the NAME of my blog The dragon Slayer....MOMMY!!!! is a reference to my illness. Those of us with AOSD(Adult Onset Still's Disease) refer to ourselves as dragon slayers ....the International Still's foundation uses the dragon symbol because of the intense fevers (often over 103 daily)and typical pink, salmon colored rash that goes with the fever spikes.

    I knew there would be no way to write about my life and experiences as mommy without mentioning my AOSD, it is just too much a part of my life. I had already taken the first step on going "public" with my illness on the facebook mommy page I admin SAHMW sometimes it was well received and sometimes I was left defending myself and my right to be a mom... I think that may have held me back from starting my own blog sooner than I did.

    I also write to bring awareness  in fact it is one one of the driving forces behind everything I do online.... AOSD is SO rare and unknown that any awareness is good... as we all know awareness equals research and without research their is NO cure. Not only do I want to bring awareness to the majority of the population that does not know about AOSD I also want to let those who DO have AOSD know that life IS NOT will defiantly not be the life you had before but that is not necessarily a bad thing (which I will discuss in detail over the next month I am sure) Although my daughter's were in High School when I became ill, my husband and I did decide to adopt an infant even after my diagnosis.... I had been led to believe that those who are chronically ill, especially those with Auto Immune problems and on chemo medications could not adopt.... That is a huge misconception and just one of the MANY things I hope to make people aware of through my writing.

    Once you are given your diagnosis everything STOPS while you are sorting things out in your head...only the world around you doesn't stop it keeps spinning and you are left trying to keep up... I discovered that trying to find the humor in my situation was the best way to approach this as well as to use my medical knowledge and connections to bring awarness for AOSD...that is what motivates me every time I log onto my computer.

    My children give me the will to live and my desire to educate everyone I can gives me the courage to tell my story.....

    Welcome to my life, please enjoy

No comments:

Post a Comment